A letter to Danny
We did it! On Thursday we opened up our donating pig, Lela. Our Monthly ritual of opening little Lela has become an exciting part of our routine. Leonique and I play a guessing game, as to how much Lela has collected for the month. As you know, Lela was collecting for your Danny Did Foundation. Your uncle and Executive Director of the Foundation, Tom Stanton, has been a great help, thanks to him, we were able to make this happen. He sent us an article regarding SUDEP and Epilepsy, which I’m sure you would find interesting.
The NY Times published an article regarding the death of a young teenage boy (he was 19…) due to SUDEP. Just like yourself, he was taken at a young age. The article raises several alarming issues regarding the stigma of SUDEP, how it is considered controversial for a doctor to mention it to his patient unless the patient is a high-risk candidate, as it may ‘burden‘ the patient. Maybe if it was mandatory for doctor’s to mention it and make families aware of the issue, we might find less occurrences. The article is a good read and very informative and we have posted it below. Also, the resources page on the Danny Did website is a great source of information for those who need answers to their questions regarding Epilepsy.
We are doing what we can in raising awareness through social media and through our donations page and we hope that past guests and future guests will continue spreading the word. We hope the little we donate this month will help someone, somewhere and give them a little more hope than they had yesterday 🙂 Your smile gave us courage to speak up and tell people that something needs to be done.
Here is the link to the article on SUDEP : http://www.nytimes.com/2010/07/27/health/27epil.html
We are so so happy to say we collected $305USD for the Danny Did Foundation. These donations were made by cruise passengers from the Mariner of the Seas and Carnival Splendor. We had a total of 8 ships this month, so considering the majority of the donations are $1’s or the occasional $5, that’s an amazing accomplishment.
We had so many passengers come up to us and shake our hands, telling us they had a brother, or sister, or friend with Epilepsy and that raising awareness was so so important. So thank you Danny…thank you for giving us the opportunity to touch so many people’s lives, thank you for being there and thank you for having found your way into our hearts.
Danny, we hope that wherever you are, you are smiling, laughing, playing and seeing what an effect your life has made on so many lives. You can see the happiness here, a collection of pictures of everyone who donated to Lela the donating Pig for the month of July.